Ella, Sue, Mike, Isaac and Aaron
Sue Robins is a writer and mom – and a consultant in the area of family centred care for pediatric health centres. Sue and her husband Mike have three children, ages 18, 15 and 8. Her youngest son, Aaron, has Down syndrome.
Sue believes in the power of story-telling to motivate, inspire and educate in the world of health care. She has been on contract as a paid Family Advisor with the Stollery Children’s Hospital for the past two years, and is now their Family Centred Care Consultant. Her recent clients include SickKids Hospital in Toronto, and London Health Science Centre’s Children’s Hospital.
In the unpaid work world, Sue is the co-founder of the Edmonton Down Syndrome Society’s peer support program, and has been a Coordinator for the past six years. She was also the chair of Canadian Family Advisory Network (CFAN) from 2008-2010, and previously held a position on a family council for a local hospital for four years.
She has spoken on several topics at local, national and international conferences including: The Value of Peer Support at the World Down Syndrome Congress in Dublin (2006); Stollery Pediatric Grand Rounds in 2010 (Partnering with your Pediatrician); Chief Medical Rounds at SickKids (Disclosing Diagnosis) and Meaningful Engagement of Families at the Consumers Reforming Health Conference in Australia (2011).
Sue has had two essays published in the Globe and Mail reflecting on having a child with a disability, and has recently spoken in the media about ethical considerations with prenatal testing.
In 2008, Sue participated in a four day intensive training seminar on family centred care with the Institute for Patient and Family Centered Care.
She has a Bachelor of Arts in English and a post-degree certificate in Health Care Administration. Sue is currently working on a Professional Communications graduate certificate from Royal Roads University.
